Sunday, September 23, 2018

Three Years: I Am Here


Today is the 3 year anniversary of my first partial seizures.

I've decided that from here on, I'm making the anniversary a self-care day. So today I took myself out for lunch, bought a new book, had two naps, and hung out with the puppy. :)

Yesterday was momentous because I ran a 25km trail race, which was my longest distance in three years and represented a bit of a turning point. I feel like the hardest part is done (hoping, praying, knocking on wood...). The past three years have been hell, but I think the worst is over. I nearly cried three times throughout the race because of how much it meant to me, and I was super slow and it was really tough, but I was happy just to be able to do it after all that my body has been through and how hard it has been to get back here.

Now instead of just surviving, I can start moving forward again.

  • I'll be meeting my new neurologist on October 22 (finally!). 
  • I've reduced my Keppra dosage a tiny amount (without doctor's permission--just on my own) because it's the one that makes me feel crappy all the time and I'll be asking for a new med when I meet the new neuro anyway; I'm already feeling better even with a tiny reduction.
  • I had a dietitian look at my food logs for a few weeks and she gave me some suggestions to implement in my diet;  it's too much to change all at once but gives me some things to work on.
  • I'm still looking for a new job... that's the priority right now. 
  • Also planning more races for 2019 :)
In the immortal words of P!nk (this is the song that was in my head for the whole race yesterday):

May the light be upon me
May I feel in my bones that I am enough
I can make anywhere home
My fingers are clenched, my stomach in knots
My heart it is racing, but afraid I am not
Afraid I am not
   
I am here, I am here
I've already seen the bottom, so there's nothing to fear
I know that I'll be ready when the devil is near

I am here, I am here