Thursday, April 12, 2018

Random Updates

Doctor Changes
As I mentioned before, I've asked for a referral to a new neurologist because my old one is crapping out on me (still waiting for that, but it will take months). Then yesterday I got a letter in the mail that my GP is moving to the Island!! So I'm losing him too. :( I hope his replacement is ok, because I love my GP. He's the good one.... :(

Antibiotics
A few weeks ago I was put on antibiotics for an injury. It's the first time I've been put on antibiotics since being on AEDs. Big mistake. It was a walk-in clinic doctor and I told her which meds I'm already on and to make sure it's compatible. She did not take any time to check, but simply said, "this one is really gentle" (my GP would have double checked...). She gave me Cephalexin. I couldn't even finish the prescription; I had a massive cluster of very intense partials while on the Cephalexin. Looked it up and sure enough, it's in a class of antibiotics called Cephalosporins, which can lower the seizure threshold. Apparently it's a relatively rare conflict, but it does happen. As soon as I stopped taking it, the partials stopped again. So now I know: antibiotics = bad. And don't trust walk-in clinic doctors. 

Stress
I've been under an enormous amount of stress lately. I don't even know where to start so I won't get into it, but it's not good for my health. I have a plan and am going to make some changes to my life to get the stress under control. In the meantime, I've been focusing on self care. I've also started seeing a counselor. This was recommended to me a long time ago, but I've only recently started, because I happened to meet one who specializes in people who have chronic illnesses. When I met her and she told me what she does, I was shocked. There are counselors who specialize in people with chronic illnesses?! I wish I'd known this in the beginning, when it all started. Interestingly, she had been wondering about how to expand her practice. I told her she should be partnering with the doctors' offices, because I wish someone would have told me in the very beginning, when everything was new and terrifying. I wish my neurologist would have handed me a counselor's card and said, "here's someone you can talk to about this."

Aside from that... just plugging on. My next neuro appointment has been pushed back to May now (they've now changed it THREE times) so nothing else to tell.